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Quit 137 days ago
roose27roose27 02 Dec 2019 13:01
in discussion Forum / My story » Quit 137 days ago

It's been 137 days of me not taking the pills (after taking about 4 to 5 times a day (2 of those that dissolve in the water each time) for around 3 years) and overall I feel good, I have way less frequent headaches (the last 2 years before I quit I had a headache literally everyday and Solpadeine wasn't helping) which is great however none of the alternative painkillers work on me…like I've tried all kinds of different painkillers with different ingredients and it's like they don't work on me at all anymore. Which is A Problem, I had a dentist appointment today and it hurts pretty damn badly but painkillers are not helping, even tho it's strong painkillers (with different ingredients like I said) that help people after surgeries. I only try taking any of those alternative painkillers when the pain gets really bad, but it seems my body does not react to it…. so like is it possible that solpadeine damaged my neurotransmitters this badly, because that's what it feels like……. did anyone have a similar problem? I keep hoping it's because my body needs more time without solpadeine and it will get back to normal, but it just doesn't and I've wanted to bave a surgery, but if no painkillers help me it's like. there's no way I could deal with such extreme pain. And doctors have been completely unhelpful and google as well so I just don't know what to so :(

Quit 137 days ago by roose27roose27, 02 Dec 2019 13:01
Re: I'm back :(
StormAtSeaStormAtSea 28 Nov 2019 20:06
in discussion Forum / My story » I'm back :(

One more thing…

I stopped drinking caffeine a while ago by slowly reducing coffee, tea, etc. to zero. I removed a little from each mug the first day, then a little more the next day, etc. It took a while but it was painless. I have found that quitting other forms of caffeine first has made Solpadeine withdrawal less painful. The withdrawal migraine is not as intense or long-lasting. I was also prescribed a beta-blocker that doubles as a blood pressure medication and a migraine preventative. It does not prevent migraine but it has helped reduce the duration of attacks from 4-5 days to 1-2, which has made a huge difference.

My neurologist told me not to take Solpadeine for migraine because it makes it worse in the long run. I feel, at this stage, that Solpadeine withdrawal and migraine are the same thing for me. I think caffeine withdrawal was always my worst underlying trigger and, of course, Solpadeine contains caffeine. I suspect it comes down to how big a burden of substances (caffeine, codeine, paracetamol, alcohol, foods, etc.) the liver can cope with.

As an aside, if I have been off Solpadeine and caffeine for a few weeks, I can drink considerably more alcohol without suffering a hangover…! When I am drinking caffeine and/or Solpadeine regularly, though, even one alcoholic drink can trigger a migraine, so I rarely drink.

I have also found the following physical technique useful for relieving the throbbing pain of migraine, as has my friend. It only works for me when the pain is concentrated on one spot, not when it's diffuse, but it does help. I hope it helps you, too:

https://www.youtube.com/watch?v=beYgjLGAwEI&t=34s&fbclid=IwAR2VrmgwW8Lwl4RYbJ__PWVBcy9Pn36wbTof2jQ9XhUh2Yn5d9so0hjFCeY

Re: I'm back :( by StormAtSeaStormAtSea, 28 Nov 2019 20:06
Re: I'm back :(
StormAtSeaStormAtSea 28 Nov 2019 17:19
in discussion Forum / My story » I'm back :(

Hi MelMelMel,

Just wondering how you are doing now?

Your story is so like mine. I don't know if any of the following will help you but sharing in the hope that it might…

I've tried tapering in different ways. Sometimes, it has worked but sometimes merely starting to taper throws me into cold turkey. I have come to the conclusion that cold turkey, although horrendous, works better to get rid of Solpadeine - for me, at least.

When you have those 3-4 days of not needing Solpadeine after a bad attack, I wonder if your body has detoxified somewhat during the attack, especially if you have been unable to take painkillers or eat and drink? That happens to me. If, at that point, you are able to avoid controllable triggers, I wonder if your migraine might stay away and obviate the need for more fizzies?

I find eating nothing but rice during an attack helps to shorten it by days. Anything more complex, even potatoes, can intensify the pain. I worked this out myself but I was interested, subsequently, to find the following on Dr Neal Barnard's website: https://www.pcrm.org/news/blog/struggling-migraines-try-plant-based-migraine-diet

I know you have tried a plant-based diet but am wondering if you targetted certain foods as triggers? Quite apart from chocolate and other obvious triggers, I find that even relatively healthy foods, e.g. sourdough bread, miso, soups based on bone broth, etc. are awful triggers when I am vulnerable, or just after an attack. I can eat them at other times no problem, though.

For me, migraine is like a jigsaw puzzle: if all the pieces are there at once, I get an attack (e.g. insomnia, menstrual hormones, food sensitivities, Solpadeine withdrawal, etc.) but if only a few salient conditions are present, I don't.

Regarding high blood pressure, Solpadeine capsules do not contain sodium, so should be less likely to raise BP to the same extent. I know they don't have quite the same effect but I find they relieve pain to some degree - sometimes very well and sometimes not so well but I could say the same for the fizzies, to be honest.

As regards paracetamol poisoning, I couldn't agree with you more. The caffeine and codeine are addictive but it's the paracetamol that is most dangerous. A friend of a friend died of a staggered paracetamol overdose. He didn't take it all at once, just a bit too much over a period of time to cope with pain. My body can't really take eight Solpadeine tablets a day. It invariably triggers cold turkey the second it gets a chance and eight is the maximum 'safe' dose.

I wonder if moving to Solpadeine capsules might help you (re. blood pressure)? And then going back to your plant-based diet with an emphasis on water, anti-inflammatory and pain-free foods and avoiding triggers? (You might have already done this.)

I'd love to hear more about your plant-based diet, both migraine-wise and generally, if you feel up to writing about it sometime. I have been dabbling with it for the past 10 months. It has helped me with a serious eye problem but I think I need to commit to it more fully to reap all the benefits.

I hope, whatever happens, that you find a way out of this Solpadeine dependency. I hope we all do.

All the best,

Storm

Re: I'm back :( by StormAtSeaStormAtSea, 28 Nov 2019 17:19
Re: I'm back :(
MelMelMelMelMelMel 12 Sep 2019 09:35
in discussion Forum / My story » I'm back :(

Ended up taking a whole one as I woke with a migraine. I refuse to take the full dose of two though as I kind of hate the slow feeling it gives you. Going to try really hard not to take anymore today.

Re: I'm back :( by MelMelMelMelMelMel, 12 Sep 2019 09:35
Re: I'm back :(
MelMelMelMelMelMel 11 Sep 2019 21:39
in discussion Forum / My story » I'm back :(

Took one today. Taking 3/4 of one tomorrow. Fingers crossed it works this time.

Re: I'm back :( by MelMelMelMelMelMel, 11 Sep 2019 21:39
Re: I'm back :(
MelMelMelMelMelMel 10 Sep 2019 14:56
in discussion Forum / My story » I'm back :(

Update :)

Managed to stay migraine free today so far, so I haven't found myself reaching for a fizzy. I had a light headache earlier but that went away with a big glass of water and a sugar-free pepsi (sometimes staves off a headache, sometimes makes it worse). I'm still kind of trying to taper off, but if my body doesn't want one today, then I'm not going to take it. I'm kind of confused as to how to approach going off them, because there are occasions where I can go three or four days without needing one. These usually happen after a really intense migraine attack, in the days after, where I am pain-free but kind of dazed. It's hard to tell how much my body is relying on Solpadeine when I can have these sporadic patches of non-use. The pain usually kicks back in after those days though, so maybe I just have a longer withdrawal threshold or something. Maybe cold turkey is the only thing that will work for me. My liver will thank me either way.

Re: I'm back :( by MelMelMelMelMelMel, 10 Sep 2019 14:56

Hi Storm,

I replied in the other thread about the plant based stuff :) Just in case you missed it!

I hope you're doing well. It's great that you're not craving them. Migraine just adds that extra layer of pressure when you're trying to give up Solpadeine :(

Re: Cold turkey (again) by MelMelMelMelMelMel, 09 Sep 2019 13:15

Hey Storm, sorry my reply is a year late! I rejoined today and was looking back over my old posts.

Unfortunately, I've gone back to taking solpadeine due to unmanaged pain. I just made a new post about it.

However, to answer your question a bit more, as I didn't really cover it much in my recent post: I did find that plant based eating really helped to reduce both the frequency and severity of my migraines. I do actually feel if I had kept going with the lifestyle changes, and kept tweaking accordingly, I would have been able to eliminate 99% of my migraine attacks. Yoga, meditation and exercise really, really helped. Intense exercise or high sports could trigger one for me, but aerobic exercise, walking, climbing and dancing really seemed to help to curb the pain from setting in.

Diet-wise, I really enjoyed eating plant-based. I did have occasional meat every now and again, but not because I liked it. It was more of a politeness thing, if somebody had prepared a meal or something. I cut out a lot of grains and stuck with seeds, lentils, brown rice and pulses as the bulk in my meals. I think keeping a really consistant blood sugar level really really helped to prevent triggering a migraine attack. I was chowing down on plenty of leafy greens and veggies which likely had a great anti-inflammatory effect on my system. I'm really hoping to get back to that, along with more lifestyle changes, stress management and of course, no fizzies. I miss kale and beetroot burgers!

My mistake was maybe going to the gp for a management med to prevent any future attacks so I would be 100%, and all the fussing around distracted me from good lifestyle-based approaches and I ended up in more pain than when I started. I developed cluster migraines, and didn't react well to any of the meds they tried, which inevitabley put me back to Solpadeine to try and manage my own pain. From there I kind of spiraled and gave up my healthy lifestyle.

How did you get on with eating plant-based? What triggers your migraines? I really hope you've managed to find relief. I've tried a LOT of nutrition and lifestyle approaches to tackling the pain at the source like you say, so if you ever have any questions, please feel free to ask if it's any help at all :) One thing that really struck me about migraine pain was something my neurologist said. She said it wasn't a headache and that migraine is systemic. Your whole body has the migraine, and that horrible, unrelenting head pain is just one of the symptoms. She said that some people are just wired to be a lot more sensitive to stimulous than others. They did a study where non migraine people and migraineurs looked at a series of disturbing or stimulating visuals. The reactions to these visuals stayed much longer in migraineurs' brain scans than they did in non migraine. That's why people with migraines can suddenly get one from a strange smell, or lights flashing, sounds, atmosphere or something they ate. That makes me believe there's something irritating the body's nervous system or digestive system, and having an oversensitive makeup can trigger a migraine attack or "overreaction". I'm almost sure a lot of modern diets and lifestyles only lend to making a migraine prone person feel worse. It makes sense to explore changes in diet, lifestyle, stress, sleep, meditation hydration etc.

Re: Want to quit solpadeine by MelMelMelMelMelMel, 09 Sep 2019 12:55
Re: My story
MelMelMelMelMelMel 09 Sep 2019 12:15
in discussion Forum / My story » My story

You've made great progress! It's really encouraging to read through your journey. I hope you can stay off them for good :)

Re: My story by MelMelMelMelMelMel, 09 Sep 2019 12:15
I'm back :(
MelMelMelMelMelMel 09 Sep 2019 11:54
in discussion Forum / My story » I'm back :(

I joined this forum in 2015 if I recall correctly.

Looking back on my posts makes me cringe internally because I was so determined to give these stupid things up, and I had all plans and methods to try. I was even deathly afraid my liver was packing itself in all that time ago, and felt it was my last chance to get healthy. Yet, in the past year, I've slowly gone back up to using fizzies daily. I'm so disappointed in myself. I've had liver ultrasounds and LF tests and I have fatty areas on the liver. This could be from diet, or could actually be stress from taking so much paracetamol. My gp just says to eat healthier and didn't seem at all concerned with the number of painkillers I was taking almost daily. That's the real danger in taking these things, the toxic load of paracetamol. While codeine is, of course, addictive, it's not the thing that's going to slowly destroy your body, it's the paracetamol.

I read posts on here where people are taking 10 -15 of these things a day and I'm terrified for them, because they are literally overdosing on a regular basis. I rarely ever exceed the full recommended dose, and I'm still feeling the effects on my body so I fear for their organs. I really do. If there's anything to put you off taking the fizzies, then a slow death from liver failure should be really high on the list. It's my number one fear, yet still I find myself reaching for fizzies once a headache starts. I have high blood pressure now too, no doubt from the whopping amounts of sodium in these things. These things really are evil and I hope all of you are able to find a way to get them out of your lives.

I was doing really well for a while, and even got to the point where we could have fizzies in the house and I would simply take them for a BAD migraine that popped up once a month or so, among smaller less intense attacks. I was taking a normal amount and not craving them any further. I was eating healthy, exercising, and managing my stress levels so that I didn't trigger as many migraines. This might have been my mistake, still having access to them in times of genuine physical pain. Sadly, no other meds worked for my migraines, physio didn't help much, and I started developing extreme nerve pain that started in my neck and shot through my head. My neurologist felt I was having cluster migraines, or "suicide headaches" and tried lots of different meds on my pain, along with herbs and supplements. Nothing other than a codeine-based painkiller had any effect on the pain. So I started relying on the fizzies a bit more again as of course, no gp would ever write me a prescription just for codeine for what they called "headaches"(understandable) I voiced my concerns over my liver with all these different meds and it was sort of brushed off. I'm sad to say I became that person who self-medicated. In my mind, I didn't want daily doses of abortive meds for migraine and I thought I would just take occasional fizzies if the pain got bad. That way I had some control over what went through my system. Wrong… My migraines got worse, my diet got worse and before I knew it, I was taking them almost every day again to control pain, apart from occasional 2 -3 days breaks where I was inexplicably pain-free. It's been like that for about a year and a half. I still rarely take more than 3 500mg tabs in a day (4 hours between), so technically shouldn't be overloading my liver, but I still worry that I am. The sodium is still probably destroying my kidneys. I'm also getting paranoid that I've taken an extra dose and forgotten, so I have accidentally double dosed. My life is consumed by a combination of fear and reliance on fizzies.

I'm trying not to take any more than one at most today, and yesterday I only had one as I was lucky enough not to trigger a migraine. There's a headache brewing right now, and I'm feeling feverish. There's a pain in my side where my liver is, and that's the one I'm focusing on, because that could be my body warning me enough is enough. No more. I know I have to taper off rather than going cold turkey, because my migraines will literally knock me out for three days if I trigger a bad one. I'll try taking half a tablet today and see how I fare.

If there's anything to take away from my post, is think of your liver. Think of the amount of paracetamol consumed each day when you take fizzies. In a way it's worse than drinking, because paracetamol OD can creep up on you. Some day you could take just one extra tablet past the recommended dose, and your liver might decide it's had enough. You can feel absolutely fine for 2-3 days after that, not even knowing the damage has already been done. Then your organs start shutting down. That's not a peaceful way to go. It's agonizing, and slow with no cure other than a liver transplant. Pain relief likely won't work as your system has no way to process it while it fails so they probably won't be even able to make you feel comfortable. The slight high from fizzies are NOT worth that.

I'm going to post updates here, to hold myself accountable to anyone who might read this. I know not everything get s a reply on here, but at least it will be something of a journal for anybody else on their journey.

On a more positive note, I did have some success with reducing migraine frequency, and managing pain while I was being healthy, so if anybody is in a similar boat, I'm happy to share that :)

I'm back :( by MelMelMelMelMelMel, 09 Sep 2019 11:54
Re: My story
StormAtSeaStormAtSea 18 Jun 2019 13:47
in discussion Forum / My story » My story

Hi Walk_86,

Hope you're doing OK.

It's good to read your progress from day to day. It's an amazing achievement to have come off so many Solps so quickly. I found it hard to quit eight a day. Kudos to you and your partner.

I hope you are continuing to feel good.

All the best,

Storm

Re: My story by StormAtSeaStormAtSea, 18 Jun 2019 13:47
Re: My story
Walk_86Walk_86 11 Jun 2019 08:46
in discussion Forum / My story » My story

Day 11-12 and 13 I think.

Yesterday I wasn't letting me post for some reason but all is just the same. I still feel I can drop to 2 a day but as I've seen alot in here the morning one is the hardest to come off. I'm trying to train myself to take this later on in the day.

Please folks get help from friends and families. I've lost so much memories taking these and I want my life back. I no longer have the urge to have any in my pocket , I no longer have the insttusive thoughts I used to get , but I'm taking each day as it comes as I know as soon as I am unwell then it cannot all start again. Feeling fresher.

Speak soon and take care

Re: My story by Walk_86Walk_86, 11 Jun 2019 08:46
Re: My story
Walk_86Walk_86 08 Jun 2019 10:02
in discussion Forum / My story » My story

Day 11 and 12 hahaha

Forgot to update yesterday as I was off. Again sticking to the tablets. What helps more is my partner has written in everyone so she would know that I've taken more. I also have no urges to go to pharmacies. I still k is I have a long road ahead but what's life without challenges eh.

Anyway have a good Saturday folks

Re: My story by Walk_86Walk_86, 08 Jun 2019 10:02
Re: My story
Walk_86Walk_86 06 Jun 2019 07:28
in discussion Forum / My story » My story

Day 10. Wowsers

Still feeling great. No change in sleeping habits (may come when I'm down to 2 ) no change to toilet habits and no real migraines since reducing. This to me is a far better way of doing it.

I have taken up coaching and this has taken alot of things off my mind (feeling great , and not depressed and feeling better )

Have a good Thursday folks .

Ross

Re: My story by Walk_86Walk_86, 06 Jun 2019 07:28
Re: My story
Walk_86Walk_86 05 Jun 2019 06:31
in discussion Forum / My story » My story

👍day 9.

Still feeling pretty good considering I'm taking 4 X less. Sleeping well and eating good. Had alot of heart burn during the night. On this post I'll talk about the depression side. I didn't realise that these give you depression and couldn't figure out why I felt so low as I have beutiful wife and kids, good job but realise by reading the forum that this happens with these. Again ironic we take these fizzys to get a buzz but long term gives you depression , headaches , addiction and memory loss. 2 local guys have taken their life in the past 2 day (one is an athlete who had the world at his feet ) and depression is very real. From the outside looking in people can seem.jappy bit behind close doors it's a different story.

The UK needs to give more help for this.

Anyway again ill keep updating everyday

Re: My story by Walk_86Walk_86, 05 Jun 2019 06:31
Re: My story
Walk_86Walk_86 04 Jun 2019 08:11
in discussion Forum / My story » My story

😱day 8. Wow

Still no withdraw symptoms. Managed to go down to 4 easy enough. I have been addicted for 15 years and thought it would be harder. Maybe the heardest part still to come , maybe not but I can only hope. I used to take these for the sake of taking them. Same time everyday , same cup, same amount of tablets for no reason. I didn't get a buzz, I didn't have a headache so it's all in my head. I'm glad I'm down to 4/6. By the end of the month I will trial having none whatsaober and hopefully that will be the end of the journey. Not to say I might fall back in to it was. As I mentioned before I can only take soluble or capsules I can split so if I'm.ill in the future I might have to take 1 or 2.

Anyway folks I'll update tomorrow :)

Re: My story by Walk_86Walk_86, 04 Jun 2019 08:11
Re: My story
Walk_86Walk_86 03 Jun 2019 08:35
in discussion Forum / My story » My story

😁day 7…1 week , how many hours .

Yes I'm not completely free of these, but a massive start to the rest of my life. The happiness, the memories, more money . I had my 2 this morning , and don't get me wrong it gave me the little buzz I felt when I first took these, but I didn't want to take anymore (even though I don't have any more) I would normally be crabbit and yawning my head off already due to the amount of caffeine and codeine but feeling fresher today. .

Honestly folks if I can do it,any one can.

1. You have to be truthful to yourself a
2. Tell all the pharmacies as it will stop you going back
3. Some one needs to help (mum,dad, wife etc) it makes it far easier, but you need to do it for yourself.

I'll keep updating everyday until I'm finally off.

Re: My story by Walk_86Walk_86, 03 Jun 2019 08:35
Re: My story
Walk_86Walk_86 02 Jun 2019 11:08
in discussion Forum / My story » My story

Day 6.

Still craving them but yet I've not had nay withdrawal symptoms. Apart from being tired. I'm down to my last 4 for the week and not bothering me to even go to the chemist. I wonder what these people think of us ? . We

I'm going to reduce my intake to 4 next week and then reduce to 2.

I CAN DO THIS…

Ps isn't much people on this forum but we'll…it's helojg me.

Speak soon

Re: My story by Walk_86Walk_86, 02 Jun 2019 11:08
Re: My story
Walk_86Walk_86 01 Jun 2019 05:58
in discussion Forum / My story » My story

Day 5 , yes day 5.

I consider myself in terms of what I read on hear a serious addict. Some people are addicted taking 6 a day but I was nearly a box a day (sometimes it was a box ) . I was buying 4 boxes on line and paying £10 shipping to get them next day. These would nearly be gone in 4 days.

Anyway yesterday was great and trust me if I can do this….you can too. You need the right help and without my partner I wouldn't be able to do this.

I feel I can deduce to 4 now, she's wrote am and on on all the tablets and that would have stretched the box that was bought on day 1 to over a week. Wow … I would have bought 6 boxes and spent £40.

Anyway have a lovely Saturday.

Re: My story by Walk_86Walk_86, 01 Jun 2019 05:58
Re: My story
Walk_86Walk_86 31 May 2019 06:25
in discussion Forum / My story » My story

Day 4 👍

Doing excellent. First time I've ever managed to not think about the fizzys 24/7. Took 6 yesterday and really didn't need the last 2, however I don't want to come off them too quick. Friday is my day off so I would normally go around 3 pharmacies so I am all set for the weekend (especially Sundays ) pharmacies open late and shut early and I work so this was the day that I struggled with my addiction.

I've not taken a tablet straight away which I normally would have done., I'm going to leave it closer to 9. Feeling happy aswell. My mood swings were terrible (crazy you take these for a buzz , yet long term they make you depressed with a forgetful mind.)

Anyway I know no one has read my stuff yet , but I am going to keep updating my journey until I'm fully off these.

Take care

Re: My story by Walk_86Walk_86, 31 May 2019 06:25
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