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Re: Here we go..
StormAtSeaStormAtSea 02 Mar 2021 09:36
in discussion Forum / My story » Here we go..

Hi Okuya,

How are you getting on?

All the best,

Storm

Re: Here we go.. by StormAtSeaStormAtSea, 02 Mar 2021 09:36

Hi Mel,

I was reading over your posts again and had a couple of thoughts about your migraines.

Dairy yoghurt triggers migraine for me. I noticed that you eat it sometimes. Is there any chance you might be intolerant to it? Milk, yoghurt and cheese all trigger migraine for me, though it tends to be dose-dependent.

Re. your mechanical migraines, have you ever tried transdermal magnesium spray or bath flakes to relax your neck muscles?

My neck was broken in a car crash. For a while afterwards, it used to 'catch' if I turned my head to the left. Rubbing Better You Sleep Spray (a combo of transdermal magnesium and essential oils) worked wonders to unlock it. I went from moving it only as far as 10 o'clock to moving it all the way back.

Oddly, plain transdermal magnesium did not work so well. It seemed to be the combination of magnesium and essential oils that did the trick.

It does sting the skin if you are not used to it but it helps, in my experience, and the sting abates after a few uses. Some people find magnesium supplementation helpful for migraine, too.

You just need to be sure that you are not taking any medication that clashes with magnesium. I was subsequently put on a calcium channel blocker for blood pressure. After that, every time I used magnesium it aggravated my heartbeat and made me feel weird. It was an odd, paradoxical reaction, as magnesium usually calms the heartbeat. I think I was experiencing a supplement/medication clash, as magnesium is a natural calcium channel blocker, so it threw things out of whack.

If you are not on medication, though, it might help you: https://betteryou.com/products/magnesium-sleep-body-spray

Hi Mel,

I'm sorry to hear you're having gut issues, too.

I think it is definitely connected to codeine withdrawal. It happens to me every time I quit, usually a few days after the headache has died down. Even the most innocuous soup or cup of herbal tea can trigger it off.

Yes, if I remember rightly, my migraine doctor told me that people can become hyperalgaesic - abnormally sensitive to pain - for a while after quitting Solpadeine. Our bodies have become dependent on external opiates for pain relief and they need to relearn how to make their own opiates.

So it's all connected in some way to Solpadeine withdrawal. I'm glad to hear that it's easing off for you now and normalising the longer you go without codeine :-)

Take care,

Storm

Hi Storm,

I'll reply to this in a bit more detail soon as I'm having a bit of a whirlwind of a week!

Just wanted to answer your question about stomach issues. I know I said I wasn't feeling any withdrawal symptoms as such, but I do have a more easily irritated gut which I didn't think was connected. Now that you've mentioned it, I think it could be due to having no codeine to slow everything down.

I definitely feel a lot more sensitive and have had cramps after eating and drinking. Basically an IBS attack with all the fun stuff that goes with that!

I'm wondering if everything is just hypersensitive now that there's no fizzy dulling everything down. I've been eating much smaller meals, and avoiding anything to set off any kind of "flare-ups". Thankfully, it seems to be easing off now and normalising the longer I go without codeine :)

Re: Here we go..
StormAtSeaStormAtSea 23 Feb 2021 13:54
in discussion Forum / My story » Here we go..

Hi Okuya,

Well done for deciding to quit Solpadeine. You are absolutely right not to buy another box. There's always a reason to buy 'just one more'.

I'm in a similar place to you. I took Solpadeine from 16-41 for migraine but only as needed and I was not dependent on it.

Then I was in a serious car crash. Over the next 2-3 years, I started to take it every day. Like you, I have quit many times but I do not last long. I have been addicted for about 10 years.

I have tapered my daily dose from approximately eight a day to 4/3.5/3. I am dealing with something important right now but once it's sorted out, I'm going cold turkey on the rest.

I am certain that the sodium is contributing to very high blood pressure. My brain fog is intense. I also think Solpadeine contributes to chronic insomnia. And to top it all, my doctor at the migraine clinic confirmed that it makes migraine worse in the long run.

Wishing you the very best of luck in quitting. We'll all be cheering you on.

Take care,

Storm

Re: Here we go.. by StormAtSeaStormAtSea, 23 Feb 2021 13:54
Re: Here we go..
MelMelMelMelMelMel 23 Feb 2021 13:12
in discussion Forum / My story » Here we go..

Hi Okuya,

Congratulations on deciding to give the fizzies the boot.

I'll come back to reply properly on here later as I was just heading out, but I just wanted to say you've got this! I've been off them for over a month now, and like you, it all started with migraines.

I'll check back in soon!

Mel

Re: Here we go.. by MelMelMelMelMelMel, 23 Feb 2021 13:12
Here we go..
okuyaokuya 23 Feb 2021 10:35
in discussion Forum / My story » Here we go..

Morning folks,

Apologies for the long post, but it feels good to get this out.

I’ve been addicted to Solpadeine for 12 years. This is the first time that I’ve worked that out. A back of a fag packet calculation says that I’ve spent between 5 & 6k on them - which is roughly the size of my credit card bill!

If I’m being super truthful, and this seems as good a time as any, then I can admit that I have always taken _something_. I drank a lot as a teenager, then started taking amphetamines and built up a causal cannabis habit. None of it was heavy use (apart form the alcohol, possibly) - just enough to feel different. Those days are long gone. I haven’t drunk alcohol or smoked for 12 years, but there always been something and for a long time that has been solpadeine.

I used to suffer quite badly from migraine. They started when I was a teenager. I tried multiple medications from my GP, but nothing worked and I just learned to live with them. One day I had an attack at work and a colleague supplied me with two Solpadeine Max tablets and a glass of Berocca. It worked, like magic. The migraine eased, and I was left with that warm fuzzy feeling that we all know well. I’ve been taking them regularly since that day.

My solpadeine habit has been up and down. At times I was taking up to 12 tablets a day. I’ve cut down over the past few years and now average around four tablets a day - which isn’t a lot in the grand scheme of things, but I know that I’m addicted.

I’ve given them up before - usually just for a couple of days, but my longest stretch was 21 days.

I started this morning with four tablets left of my supply. When they are gone at the end of the day, I will not buy any more. Here are my reasons:

1. Health: I’m approaching forty now - so my body is less forgiving. The salt content worries me, as does the knowledge that there might already be invisible damage. I want to be around to see my grandkids.
2. Brain fog: I like the warm, fuzzy feeling that Solpadeine gives - but it affects my work and general motivation. I feel like I could achieve more with a clear head.
3. I HATE going to the chemist. It’s embarrassing. I rotate around four or five of them so that they don’t cotton on to me being a regular user. I will not miss those journeys.
4. The secret: My wife doesn't know the extent of it. She knows that I've taken them, but not how many or for how long. That doesn't make me feel good.

I’ve been through the withdrawal before, so I know what to expect: muscle aches, headache, and grumpiness - but they are temporary, and I can manage them. It’s the psychological stuff that I will find difficult. The lack of the ‘plink, plink, fizzzzzzzz’. The noise of the paper tearing. The feeling of opening a fresh packet. Sounds silly, but it is what it is.

I debated holding off posting this and buying another box - what’s one more? But that’s kind of the point isn’t it - there’s always a ‘just one more’.

Anyway, wish me luck. I’ll pop in daily and update with progress.

Best wishes to all going through the same thing.

Here we go.. by okuyaokuya, 23 Feb 2021 10:35

Hi Mel,

Thanks so much. I hope you are feeling better now?

Looks like my urgent issue is going to progress into next week, so I might have to hold off on cold turkey until the first week in March. I should not have anything on then. Many thanks for your encouragement with it. It is definitely the way to go. I took five fizzies yesterday, which I haven't done for a long time, because terrible insomnia started to trigger a migraine. I'm going for 3.5 today. The more I can taper before I start cold turkey, the easier it will be on my body, I reckon.

I think you are right, above, that if your brain *knows* unequivocally that it can't have codeine, it tends to calm down. Accepting the pain does help on some level. I have found that during a bad migraine, when I can't take anything because I throw it right back up. Once you accept that that is it - you're here for the duration of the pain - it somehow calms down the mind. For me, anyway.

Many thanks for recommending Dr Gabor Maté's work. I came across him on YouTube a couple of years ago but have not explored his thinking yet. I like his vibe, though, and I like his son, Aaron Maté, as a political commentator. I'll definitely check out his book. I had a lot of loss in my childhood and teens and I think it did a number on my thinking processes, along with too much caffeine (and painkillers for migraine). Health really is holistic, isn't it? The mind and body are a continuum and that which affects one, affects the other (if it can be called an 'other' at all!).

As regards migraine, I think the pain does lessen over time. Each 'wave' is a bit less bad than the previous one. One thing I find hard, though, is that a week or so after quitting cold turkey (usually forced by a bad migraine) I get awful stomach cramps and diarrhoea. I can't eat or drink anything without inducing a bad cramp that can only be relieved by a long visit to the bathroom :-( Have you had stomach issues after quitting? I think it's codeine detox, as codeine is constipating, but it's quite miserable. At least with Covid-19 lockdown (at the highest level where I live) it's easier to deal with because we are all at home! I had it last time at a friend's wedding, which was rather miserable.

I totally agree about paracetamol. It still astonishes me that it is available over the counter in Tesco when the line between a 'therapeutic' dose and a fatal dose is so thin. It's possible to overdose by taking too much at once but it is also possible to overdose unintentionally by taking too much in a staggered way over a longer period of time. A friend of a friend died this way. He just took a bit too much a bit too frequently over time and his liver gave out. Anything containing it should have screaming warnings on the packet.

I have mentioned the paracetamol issue to a few fellow sufferers here. I always feel frightened for people who are taking 24 Solpadeine a day, or even 16, etc. Or even 10 or 12, which I have also done on very rare occasions. I have no idea how anyone's body can cope with that. The dreadful thing is that while caffeine and codeine draw one in and make it hard to quit with their painfully addictive qualities, the paracetamol is lethal at high doses, especially once one goes over the maximum recommended dose of eight tablets a day for no longer than three days.

The great thing, though, is that once through cold turkey in all its manifestations (headache, migraine, cramps, the trots, backache, etc.) the pain of all these things starts to diminish, as long as we can tolerate them while they last, which is where I tend to trip up.

Just reading your post below, I'm so glad you are still off the fizzies. It's great you're experiencing improvements in sleep and heart rate. Both so important. I didn't know paracetamol was also linked to heart attacks. Thanks for detailing the damage each drug does. It is so, so important that we all know this information. I have no idea if it's connected but my uncle has Parkinson's (he's in his seventies now) and my aunt said he took Solpadeine for headache, etc. for years and years. I don't know if he was dependent on them, or if it was more a case of frequent but not addicted, but I wonder if his chronic use of Solpadeine contributed to his illness… I probably shouldn't speculate about that but I wouldn't be surprised if it didn't help, given the way they make the brain feel.

One other thing I came across recently… Apparently a diet very rich in different plant fibres (30+ different plants per week) helps the microbiome produce short-chain fatty acids that repair the gut lining and the blood/brain barrier. If I remember rightly, the information came from Dr Will Bulsiewicz (https://theplantfedgut.com/).

I have an idea that the effervescent element in Solpadeine can damage the gut lining, leading to leaky gut and food particles entering the bloodstream, where they cause chronic inflammation and pain, but I need to look into it in more depth.

Better head off now but I hope you are having a good weekend and are feeling OK.

Take care,

Storm

Interesting about ordinary headaches going with a glass of water and exercise once you are not taking Solpadeine, Mel. I find exactly the same when I have managed to quit for a period of time. I might wake up with a headache but a glass of water will usually deal with it. Exercise will help it. When I am taking Solpadeine, water does nothing and exercise makes it worse.

Just a quick update :)

Still off the fizzies.

One thing I was never expecting being off them was the improvement in my sleep and heart rate. I use a hr and sleep tracker, and since giving the fizzies up, my stats have really improved. My resting heart rate while sleeping used to be up in the 80's (ideal for sleeping hr is 50-60). My daily heart rate would hover around 90-120 just doing the slightest movements. All of that is coming down. My sleeping hr is now 58-63 and going down. My daily resting hr is 65-75.

I'm not sure if its the sodium in Solpadeine that does this to the heart, or if it's the constant need to pump more blood due to codeine being a respiratory depressant. I'm wondering if my body was chronically struggling to breathe and it made my hr rise. Food for thought. I know paracetamol overuse is linked to heart attacks in the long run.

I know I probably sound like a broken record at this point, but the more I learn about how this drug works, the more I wish there was better information about the pressure it puts our systems under.

It's like three hits to your system at once when you take Solpadeine.

1: Sodium is harsh on the kidneys, heart, and liver by raising blood pressure. These things are packed with it.

2:Codeine plays havoc with your nerves. It blocks pain signals which is wonderful for a headache, but in the long run, your body will start feeling pain far more acutely as it relies on codeine to regulate it. That starts to cause rebound pain. Rebound pain which gets worse and worse can cause you to take higher doses. The more you take, the more it depresses your respiratory system. The most common cause of death due to codeine is respiratory arrest. You stop breathing. Other long term effects can be constipation, muscle spasms, depression, liver damage, and memory problems.

3:Finally, paracetamol is really not as safe as it's made out to be. Sure if you stay within the recommended dose, you're probably not likely to do too much harm, but long term damage still builds up. The liver needs to use up valuable resources to metabolise the drug. It has to convert it into a non toxic substance. Each time it does, it still processes a toxic metabolite which it is unable to convert. This substance directly damages liver cells. Over time, this injures the liver, much like taking a drink does. For anybody taking over the recommended dose, this seriously causes harm. While the liver is very good at regenerating and healing, once advanced scars are in place, it can't reverse the damage and you can be left with a myriad of chronic health issues, or worse.

Right I'm getting off my soap box! I'm still going to keep hating on these horrible fizzy b*stards as often as I can.

Hi Storm,

It's certainly a lot easier to do it when there's less stress going on! I was lucky in that the week I decided to just stop was one where I didn't have anything urgent to do.

Still going strong here. Had what I can only describe as a mini migraine the other day. The entire thing progressed from bad to really bad in the space of an hour, then an hour of that migraine hangover feeling. Then it was gone. Usually, that whole pattern is stretched out over about 12 hours. Really feels like my system is "testing things out" to see if it can get codeine.

Let me know how you get on :) I'll try to check in as much as I can here too. If I find anything else that helps with migraine in general (it's SUCH a complicated problem, sigh) I'll update this thread.

Mel

Hi Mel,

I'll reply properly soon (have to go out in a little while) but thank you so much for your reply and for your support.

I think you're right about the body ramping up the pain in order to get some codeine. That really hit me as true. (Reminds me of Marianne Faithfull's song, Sister Morphine!)

I think you are also right when you say that perhaps there's something in our pain receptors during an attack that causes a reaction if we aren't taking "just the right amount" of Solpadeine. Even tapering by half a tablet (next to nothing in terms of all three drugs) can kick off a migraine.

I'm definitely planning my cold turkey now. I was going to do it this week but have some important things to deal with that can't wait, so I think I'll start it at the beginning of next week.

Will respond properly very soon.

Take care,

Storm

Hi Storm,

Thank you so much :)

I'm sending you all the cold turkey positive vibes! Congratulations on cutting down to such a small amount though. It's really not easy when you have legitimate conditions like migraines. The fact you're actively trying to reduce the amount over time is fantastic. I've got my fingers and toes crossed for you.

I was really dreading the fallout from going cold turkey, but surprisingly, it really wasn't as bad as I expected. The migraines of course, as you know, are the biggest challenge.

I can't say for sure if it will be the same for you, but my migraines, while bad, seemed a little shorter in duration since giving up the fizzies. Kind of like they burn themselves out when there's no codeine coming. I have a sneaking suspicion that tapering can make them worse for me. It felt like my body was aware it was getting codeine, so ramped up the pain to get more. I know you've mentioned experiences with trying to gradually cut back only to be hit with a dreadful migraine. Perhaps there's something in our pain receptors during an attack that causes a reaction if we aren't taking "just the right amount" of Solpadeine?

Thank you for the book recommendation. I'm queuing it up on my Kindle right now :)

Yes, brain fog is the worst. I think I've been taking fizzies for so long that I forgot what mental clarity actually felt like. I really hope it lifts for you. Perhaps it's a combination of all the different things for you? You mentioned psychological factors behind the brain fog as a possible reason too.

I think mental trauma can cause a lot of subtle changes that tend to get overlooked while the obvious ones are dealt with. I'm actually reading an interesting book called "When The Body Says No" by Dr Gabor Maté. It's a little bit alternative but is written by an actual physician. He talks about how life experiences and your own emotional state and stresses could be a contributing factor in certain chronic conditions and diseases. He even goes so far as to say certain personality types can be more prone to certain things. (I'm still on the fence about that) It can be a little bit confronting, but it certainly made me stop and think, and start to listen to my body and thoughts more closely. If you find that kind of thing interesting, I'd definitely recommend checking it out :)

I think you're right about the pain lessening over time. Each day is becoming easier. I'm WAY more in tune with how I feel, and now that I've mentally accepted I can't just make aches and pains go away with a painkiller, it's surprisingly easier to deal with. I feel the pain and let it pass. Each time it happens, it doesn't last as long. It's like my nerves are re-learning how to cope. Codeine really does a number on them!

The sodium in Solpadeine scared the life out of me too! I imagine once they're gone your BP could level out. I hope you see a nice steady decline in BP when you give those nasty discs of sh*t the boot :)

You're totally right that the liver will regenerate wherever possible. There have been some recent studies that show even some early scarring in stage 1 cirrhosis can slowly reverse itself if the reason for injury is taken away. I suppose I can count myself lucky as I can use it as a focus point for turning my back on Solpadeine for good. That wonderful organ processes everything, so I'm giving it all the room it needs to heal.

I can't help but worry about the people here who take huge doses daily. There is a massive lack of liver awareness from doctors when it comes to paracetamol use. They usually only focus on alcohol or sometimes food. There is little to no guidance on what to do to keep it healthy other than avoid drinking. I probably come off as obsessive about it, but I really wish there were more warnings and information from doctors.

I'm going to try and check back in here more regularly. I'll probably ramble about something completely redundant, but I figure it might be helpful for somebody who in a similar position.

I'd love to know how you get on with going cold turkey. You've got this!

Take care,
Mel

Hi Mel,

I can't tell you how delighted I am that you have kicked the fizzies :-D I'm so, so happy for you and applaud your courage to go cold turkey and boot the little sh*ts out of your life.

The liver is a master of regeneration. Now that you have stopped taking Solpadeine and are feeding your liver a good diet, I'm sure it will reward you with better health. I also think your headaches and migraines will diminish substantially over time, especially the non-mechanical ones. The mechanical ones might even ease, too, now that your body is under less strain. Are you familiar with the Liver Cleansing Diet by Dr Sandra Cabot? You might find it interesting if not. It sounds like you are following a similar plan.

Thank you for all the wonderful counsel you have given us above regarding diet, etc. It would never have occurred to me that too much water could trigger pain but it's fascinating that it does so for you and might for others, too. I know that sparkling water is a killer for me. The carbonic acid makes headaches and migraines SO much worse.

It's fantastic that your brain fog has gone, too. I'm looking forward to that more than anything. I have been plagued by brain fog since I was 16. For a long time I put it down to psychological trauma but looking back, I also started to take Solpadeine for migraine at 16. I took it without dependency for decades but fairly frequently because of my migraines, so it might have caused brain fog anyway. It was only after a bad car crash 12 years ago that I started to take it every day. The fog has been getting worse.

I'm currently taking 3/3.5/4 tablets a day (more when I have a true headache/migraine). It is going slowly downwards but it is very slow progress.

I think I might follow your lead and go cold turkey, especially as I am not taking loads. I hovered around four for months and am edging towards three. It might be time to bite the bullet and just stop. I am terrified of the salt content with my high blood pressure but the capsules do not work as well for me.

Thank you for sharing your experience and wisdom with us. Huge congratulations to you for kicking the crap out of your life. It's absolutely wonderful and I suspect your anti-inflammatory diet, plus the absence of Solpadeine, will continue to lessen your pain over time and allow your body to heal.

Take care,

Storm

Still going strong. Just trying to stay accountable by posting here. Hopefully, somebody gets something useful out of my ramblings.

I can definitely feel a difference in mental clarity. That's like night and day. No more dulled senses and half thoughts. I seem to be able to focus on things a lot more clearly too.

I'm finding it lot easier to pinpoint where my pain comes from now. Yes, I still have it, but I'm able to locate a more specific area, rather than a giant vague ache. I wonder if the fizzies messed with that?

Over the past 3 weeks, I have had two bad migraine attacks. In the past year while taking fizzies daily, I was having a bad attack every few days. The ones that start in my neck are mechanical unfortunately, so I know I'll likely be stuck with those. However, without the codeine to mess with my pain receptors, I might actually be able to diminish their intensity because I'm more in tune with warning signs my body gives me. The fizzies fog everything up, so there's a chance they actually made them worse as I was overdoing things and not realising it.

If this helps anyone out there, changing my diet had seriously helped with pain too. This will be different for everyone, but keeping inflammation as low as possible is making things a lot easier to deal with. I know a lot of us on here have genuine problems that cause real, considerable pain, and it was what drove us to taking fizzies in the first place.

I've seriously cut back on sodium in my diet, but not completely as your body needs it to thrive. You don't want an imbalance there.
I was eating a plant based diet for a while, then plant-based with occasional meat, then vegan. I've settled back to 90% plant based and 10% meat. This works for me. The meat I eat is usually fish, with lots of healthy omega fats, like salmon, mackerel etc. Because I have a fatty liver, I need to keep nutrition levels at an optimum level as I get fit. My fatty liver possibly came from inflammation, and the fizzies very well could have caused more inflammation as it was already trying to deal with something else.

Simple carbs have been shown the door haha. I have small amounts of complex carbs with lots of leafy greens. My favourite mix is quinoa or brown rice with sauteed mushrooms and garlic, cashew nuts and pan wilted spinach. A little bit of sweet chilli baked salmon mixed in is pretty tasty too. I miss rice and potatoes, but they seriously seem to trigger pain for me.

I have cut anything processed out of my diet. Even "healthy" processed options. Everything I make is from scratch. It's tiring, but it's keeping my mind occupied, and I'm kind of turning it into an "F you" to fizzies, and giving my liver the love it needs.

Soup is my best friend right now, as it lets me pack lots of nutritious veggies into a tasty meal. No bread though :(

Sugar is massively reduced, even naturally occurring ones. No fruit juices or smoothies for that matter, as the sugar is broken down far too fast for the pancreas and liver to deal with. I stick to apples, pears and berries for my sugar fix. I'll occasionally drizzle a little bit of honey into some natural yoghurt.

I try to drink around 2 -2.5 ish litres of water throughout the day, depending on activity. I drink it slowly. Water is a weird one. Going over 2L when I don't do much during that day, it will trigger a huge headache. I guess my body only wants 2L on the lazy days. The kidneys actually have a hard time processing a lot of water, so it's good to find your own personal balance. I see friends fixating on an exact amount and forcing water into their systems, regardless of weight/height or requirements. It can throw your electrolytes off balance and make you really ill.

Not sure if this will be helpful for anyone, as diet is such a personal thing, but maybe there's something in there that somebody will find useful!

I can't wait until I can look back on this in maybe a year and know I didn't touch a fizzy since. I'm really determined to make them a distant memory.

Horrific migraine today, just tailing off now. It started as a stabbing pain in the back of my skull and radiated into my eye socket and over my whole scalp. My skin hurt to touch. Even breathing set off bolts of pain. All I could do was sit on the ground with the wall to support me to keep my neck as still as possible. Didn't take a fizzy. There's a full box of them in the cupboard for the occasional time my boyfriend needs to take one for a headache, but I haven't touched them. It's weird, I really don't crave them. I know they'd help a little, but they really are NOT worth it.

One thing I have noticed since being off them is that the "regular" headaches that come with everyday life are gone, or subside with a glass of water and exercise. The migraines are still as intense as ever, but I think that's just part of my life. I just have to ride the wave every time it arrives.

Just a quick update here! Sorry I keep forgetting to log in and check.

I finally kicked the fizzies out the door 3 weeks ago. I went cold turkey as tapering wasn't working for me, as much as I really wanted it to. I know it works for other people, and I still believe it's a good way to do it, especially if you're taking larger amounts than I was.

Surprisingly, I had 0 withdrawal symptoms. Other than my usual migraines and general body aches, nothing is much different. I've completely cleaned up my diet too and am focusing on getting as fit as possible. Any time I feel a pain, or I miss the sound of a fizzy, I just accept the feeling and tell myself "Too bad, it's not an option, your liver will die if you take any"

The thing that really got me to stop was the knowledge that I have liver damage already due to a fatty liver getting pummeled by fizzies. Hopefully it's the kind that can be reversed. And I took minimal amounts a day.

If anybody takes anything from this, its that it's more than the addiction that will ruin you, paracetamol in solpadeine hammers your liver. The liver wont usually give you any signs it's struggling until its in the last stages of functioning. Those final stages are not curable, only a transplant could save you. It has over 500 functions, all of which work to keep your body alive. Every fizzy you take is another injury to that organ.

So please for the love of anything good in life, start making the choice to change today.

Re: For MelMelMel
StormAtSeaStormAtSea 10 Nov 2020 16:23
in discussion Forum / My story » For MelMelMel

Hi Mel,

I'm so sorry, I didn't see your posts until today either!

I'm sorry to hear things have been difficult for you over the past few months. Covid has messed up medical appointments for so many people with non-Covid-related issues and it's hard to know how to deal with something like EDS, if that's what it is, when you have no access to a specialist.

It's good to have some answers (or potential answers) as to why your migraines are so resistant to abortive medications, etc. but very tough to be left to manage the pain by yourself.

I can't remember but did you every try acupuncture? I'm thinking it might help if the origin of your migraines is tension and pressure in your neck. I had it for migraine. It didn't work for my headaches/migraines because I think mine are more food-related in origin but it did help to relieve pain in my upper back and shoulder area. Might be something to explore, if you haven't already, though I suspect you might have done, as you have tried so many things.

Regarding your liver, have you had any tests done to check how it is? Having tests might put your mind at ease, perhaps? 1-3 tablets a day doesn't sound like the kind of dose that would damage it but you know your own body and how it should or shouldn't feel.

I also think Covid has made other health conditions harder to cope with, especially as we have been left to our own devices and the isolation of isolation/quarantine/lockdown can make it more difficult to deal with everything.

I'm still dependent on Solpadeine too. I hover between 5-4 a day. I'm trying to taper it down to nothing but when I do, my back aches or it kicks off a headache or migraine and I go back up again. I am pretty much on 4 a day most of the time. I plan to go to 3.5 tomorrow and then 3 for a few days before tapering further.

I find that keeping the dose relatively regular, time-wise, staves off migraine, for the most part. If I take it irregularly, it can provoke an attack. My brain is still foggy and my blood pressure is too high but it is being controlled by medication.

I'm transitioning over the course of the month to a plant-based diet, adding one plant-based meal a week. I tried to do it all at once and my stomach had a massive tantrum! So slow and steady wins the race, I hope. I'll let you know how I get on with it. I stopped drinking the smoothies for a bit, in part because I seemed to be getting some kind of arthritis pain in my hands (though why that should be I have no idea - the opposite should be the case … maybe something in the frozen mango?) and in part because I got into a rut and didn't have the energy to do anything.

It's an uphill battle, isn't it? I guess we've got to remember that codeine metabolises to morphine and although not everyone takes Solpadeine addiction/dependency seriously, it is a form of opiate addiction/dependency and is also very hard to kick, so we need to be as kind to ourselves as possible.

Chat soon.

Take care of yourself and wishing you all the very best,

Storm

Re: For MelMelMel by StormAtSeaStormAtSea, 10 Nov 2020 16:23

Hi Mel,

How are you doing? I'm sorry, I would have replied to you long ago had I seen your post but I haven't been on the message board for a while.

I hope you are OK?

Take care,

Storm

Still on one a day. Feel like I've powered through pain I would usually self medicate, so that's good.

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